The Prenatal Genomics Group (PGG) is a UK wide, multidisciplinary organisation with membership open to all health professionals involved in the care and management of women and couples affected by or at risk of having a baby with a hereditary disorder. The mission of the group is to identify and promote appropriate care in this group of patients and their pregnancies to improve the quality of care offered.
The specific aims are:
- To promote multi-disciplinary models of care and develop education to enable health professionals involved with the management of pregnant women to be aware of, and be able to offer, appropriate information and tests to couples pre-pregnancy and in pregnancy to allow the diagnosis and management of single gene and chromosomal disorders that can present and have implications in pregnancy.
- To facilitate collaboration of multidisciplinary research into single gene and chromosomal conditions that can arise and cause problems during a pregnancy
- To provide a forum for the presentation of data and discussion of challenging areas involved in the care of this group of patients and their families
- To be a stakeholder and opinion leader in the UK discussion on matters relating to single gene and chromosomal conditions that can arise and cause problems during a pregnancy
- To debate and advise on ethical issues in single gene and chromosomal conditions that can arise and cause problems during a pregnancy
