About Us

The PGG is a UK and Ireland wide, multidisciplinary organisation with membership open to all health professionals involved in care and management of:

  • Couples / patients affected by or at risk of having a baby with a hereditary disorder
  • Couples / patients planning fertility treatment and pre-implantation genetic testing for structural re-arrangements and monogenic conditions
  • People with fertility issues caused by a genetic finding or being investigated for recurrent pregnancy loss
  • The mission of the group is to identify and promote appropriate care in this group of patients and their pregnancies to improve the quality of care offered.

About Us

The specific aims of the PGG are:

  • To promote multi-disciplinary models of care and develop education to enable health professionals involved with the management of pregnant women to be aware of, and be able to offer, appropriate information and tests to couples pre-pregnancy and in pregnancy to allow the diagnosis and management of single gene and chromosomal disorders that can present and have implications in pregnancy.
  • To facilitate collaboration of multidisciplinary research into single gene and chromosomal conditions that can arise and cause problems during a pregnancy
  • To provide a forum for the presentation of data and discussion of challenging areas involved in the care of this group of patients and their families
  • To be a stakeholder and opinion leader in the UK discussion on matters relating to single gene and chromosomal conditions that can arise and cause problems during a pregnancy
  • To debate and advise on ethical issues in single gene and chromosomal conditions that can arise and cause problems during a pregnancy

Steering Group Members

Samantha Doyle        Consultant in Clinical Genetics  (Co-Chair)

Stephanie Allen          Consultant Clinical Scientist  (Co-Chair)

Audrey Smith              Consultant in Clinical Genetics

Jennifer Campbell      Consultant in Clinical Genetics 

Claire Kulke                 Genetic Counsellor

Jessica Woods

Donna Kirwan

Ruth Horn                    Associate Professor in Ethics

Mark Kilby

Fionnuala Mone

Panicos Shangaris

Meekai To

 

 

 

 


          

 

PGG steering group minutes

PGG Constitution

Previous FGG steering group minutes

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