About Us

The FGG is a UK wide, multidisciplinary organisation with membership open to all health professionals involved in the care and management of women and couples affected by or at risk of having a baby with a hereditary disorder. The mission of the group is to identify and promote appropriate care in this group of patients and their pregnancies to improve the quality of care offered.

About Us

The specific aims of the FGG are:

  • To promote multi-disciplinary models of care and develop education to enable health professionals involved with the management of pregnant women to be aware of, and be able to offer, appropriate information and tests to couples pre-pregnancy and in pregnancy to allow the diagnosis and management of single gene and chromosomal disorders that can present and have implications in pregnancy.
  • To facilitate collaboration of multidisciplinary research into single gene and chromosomal conditions that can arise and cause problems during a pregnancy
  • To provide a forum for the presentation of data and discussion of challenging areas involved in the care of this group of patients and their families
  • To be a stakeholder and opinion leader in the UK discussion on matters relating to single gene and chromosomal conditions that can arise and cause problems during a pregnancy
  • To debate and advise on ethical issues in single gene and chromosomal conditions that can arise and cause problems during a pregnancy

Steering Group Members

Deidre Cilliers             Consultant in Clinical Genetics  (Secretary)
Carol Gardiner            Consultant in Clinical Genetics  (Chairman)
Diana Wellesley          Consultant in Clinical Genetics (Treasurer)
Alison Male                 Consultant in Clinical Genetics
Tara Clancy                 Consultant Genetic Counsellor
Claire Kulke                 Genetic Counsellor
Charlotte Tomlinson    Consultant Genetic Counsellor
Professor Mark Kilby   Consultant in Fetal Medicine     
Kelly Cohen                Consultant in Fetomaternal Medicine
Alec McEwan              Consultant in Fetomaternal Medicine

Dom McMullan           Consultant Clinical Scientist
Sian Morgan               Consultant Clinical Scientist                       
Stephanie Allen          Consultant Clinical Scientist (Webmaster)

FGG steering group minutes

FGG Constitution

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